As you may have noticed, this is a personal website serving a function of providing information about my individual experience – what I have learned, how I have coped, and the information which was key to understanding my pain.
This is not a medical website and cannot substitute for professional medical advice. Remember, only a GENETICIST can confirm a diagnosis of Ehlers-Danlos Syndrome. So, if you suspect you have this condition (namely because you have generalized joint hypermobility), please speak with your primary care physician about referrals to rheumatology and genetics in order to find the source of your hypermobility. Only with the RIGHT information can you begin the process of managing your condition and retaking control of your life in spite of the pain.